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By Patrick Widera (More) • Last updated on October 30.09.2023, XNUMX • First published on 07.08.2012/XNUMX/XNUMX • So far 5240 readers, 2536 social media shares Likes & Reviews (5 / 5) • Read & write comments
Sylvia Paul has been a member of the board and managing director of the KinderHerz Foundation for children with congenital heart diseases for over ten years. In an interview, she explains how funds are collected and what they are used for – and what role that plays Internet, crowdfunding and open science play a part.
Sylvia Paul is a business economist and initially worked in the tourism industry, where she spent a number of years in managerial positions Features worked, for example in the German Tourist Association. She later switched to public relations and Marketing and worked, among other things, as press spokeswoman for the working group of German airports and as association coordinator for private medical clearinghouses.
In 1999 I met Friedrich Ludwig Müller, who had already worked as a PRAdviser worked for Hans-Dietrich Genscher and Walter Scheel. At that time, he himself could already look back on a long experience in fundraising with the current honorary president of the KinderHerz Foundation, Mr. Friedhelm Rentrop. Among other things, he co-initiated the Karl and Veronica Carstens Foundation and the German Foundation for Monument Protection.
I let him convince me to get involved with the heart children. At that time, Mr. Müller was already dealing with the Idea an international aid organization for children with heart disease and would prefer to publish all publications in German, English and French. But in the end we decided to start with a professional one Structure in Germany and that is how the KinderHerz Foundation was founded. Since then, the KinderHerz Foundation has been supporting the equipment of heart stations in hospitals and important cardiological and heart surgery research projects throughout Germany.
The Online-Fundraising for the KinderHerz Foundation is still in the development phase. However, we can see a general trend that the volume of revenue from proceeds and donations through our website is growing year on year. With the sum of the donations, which are based on traditional ways collected through long-term and large donations, but they cannot yet measure themselves. But that probably also has something to do with the fact that online donations for our Organization is not (yet) typical
My impression is that the instrument of online donations has so far mainly been used by those organizations successfully deployed to provide assistance in the event of a disaster. Where quick help is needed, online donations are better accepted.
In our case, however, many of our donors know us personally and long-term relationships with donors have often developed through channels other than the Internet. This People don't usually donate online.
Yet we are very satisfied with the structure we have achieved so far, because campaigns such as the children's heart forests give us the opportunity to support people through this path Commitment for the benefit of children with heart disease.
The development of our website and the associated shop has so far been based on the principle: if someone can support us with a task, then we do it Projects also around.
The redesign of our website was given to us by the father of a heart child who works in this field. Unfortunately, the online income so far does not justify the fact that we have a larger one here Investment and in particular would fundamentally realign the web shop.
Correct. We organize charity events, for example, and also offer support for targeting exclusive charity events. In contrast to agencies, which organize charity events completely for an organization and then also carry out, we restrict ourselves to an accompanying and supporting role.
We help, for example, in press and public relations, make interesting contacts and look after attractive raffle prizes from the circle of our donors.
I know from some of our partners that they also communicate their events through social media channels. We ourselves have not done so far.
Well, that has to do with the self-image of the KinderHerz Foundation. We have to Objective It is assumed that as much of the income and donations as possible go directly to the children of the heart and that is why we rely on an organizational structure that is as lean as possible. Of course, this means that we have to set priorities in our work. The development and maintenance of social media such as Facebook, Twitter or Xing have so far failed due to a lack of time and manpower.
We have had the idea, however, to present themselves more strongly in the social web for two years. And we have only recently intensively informed ourselves internally about how we would like to structure our profile in the field of social media in a structured and professional manner. However, as long as we are not able to provide the necessary resources, without personnel and time, without neglecting our work for the heart minders, we still take a step away from this step.
Yes, I am aware of this possibility. One of our partners recently introduced an online auction into a charity event. We have pursued it with great interest but have not yet been able to integrate it into our own portfolio for charity events.
With such innovative Methods there is always a certain skepticism on the part of the organizers and unfortunately we have not had any experience with it so far. So it will probably be a while before online auctions establish themselves as an integral part of our portfolio.
No, not necessarily. Good things sometimes take time. It was similar with our children's heart forests. The idea was born many years ago.
But it took until October 2010 before we had done enough convincing to be able to inaugurate the first children's heart forest in Schleswig-Holstein. Today there are already five forests, including a KinderHerz apple forest in the Uckermark. Two more are on the verge Implementation.
We have previously received a small donation for our heart children through a project on Betterplace.org. Then we went with betterplace ins Conversation came. In addition, we have already designed our own project with which we would like to collect donations for the KinderHerz Foundation on an appropriate platform. For the implementation, we are currently in negotiations with other cooperation partners and celebrities whom we would like to involve in the project.
Once the preparatory talks have been completed and the Presentation has been successfully implemented on our own project website, we will start our first project. At this point in time, I can't say with XNUMX% accuracy whether we'll be able to do that this year or not until the beginning of next year.
Above all, we finance research projects. The treatment of heart children today and in the future can be done even better and with less burdens on the small body, which requires intensive research in cardiology and pediatric cardiac surgery.
The research results obtained can also be used to optimize further research projects.
A good example of how the research results obtained can be used to optimize further research projects is the Kinderheart Center in Giessen. There, one is currently preparing to prepare a request for support from the Children's Heart Foundation.
On the basis of this project design, we were able to establish that we have already promoted a similar project in Tübingen. We then launched a cooperation between the doctors in Giessen and Tübingen. This way, our resources for the heart children can be used even more optimally.
At present, we are very keen to make the results of our research projects more visible to the public. In the past year, we have set up an area on our website that will be used to document reports, data and research results. This area is currently not yet released.
So far, we have informed our donors about the use of donations and research results through a regular newsletter. As an organization, we face a certain dilemma with this question.
On the one hand, we are encouraged to keep the administrative costs as low as possible in the interests of the heart children. On the other hand, social discourse shows that donors in Germany are increasingly interested in the use of donations and the results.
For this we would have to hire more staff and that would only be at the expense of heart children. Under the current conditions, we have therefore decided that helping children with heart disease is more important than even more comprehensive documentation. Our donors have these decision also supported so far.
The implementation of Open Science is so far, so I can say the principle, not yet provided. But it is an interesting approach, which should be considered more strongly in the future. It is certainly also a matter of convincing our co-operating doctors.
So far, the doctors publish according to our Background their research results primarily in renowned specialist publications. An increased social debate about Open Science would certainly be helpful in order to make this form of collaborative work usable for our research projects and to remove obstacles.
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Patrick Widera is a graduate political scientist and trained fundraiser with a focus on communication consulting, further education and social media consulting. Among other things, he has worked in the state parliament of North Rhine-Westphalia and is responsible for the areas of social marketing and social media measurement at the Institute for Communication in Social Media. All texts by Patrick Widera.
How do you become successful? The example here in the text shows very clearly that there is another way. It follows for me: Is not it much more important what personal success means?
When Mrs. Paul met Mr. Müller, her foundation didn't even exist. At that time, Mrs. Paul was working as the manager of another association that campaigns for children with heart disease and ultimately left it, I believe in 2006, and founded the kinderherzen gGmbH foundation. It should also be said that Ms. Paul is not only the sole director, but also the managing director. She definitely does not do the latter on a voluntary basis.
[edit: insult removed]
Hello Mr. Globich,
I have removed the offensive note in your statement, also because nothing else is stated in the interview - please read carefully. I have added the reference to the management.
They touch with their comment a problem circle, which I noticed in the interviews situation also. Unfortunately, Mrs Paul did not want to make any further use of the use of resources, so I could not tap into any deeper knowledge. The quota they noted would certainly be deductible from the annual financial statements without major effort. But as long as the donors who support the Stiftung Kinderherz gGmbH do not insist on more transparent structures, the state is just as it is. Ultimately, it is the civil society task of each individual to research carefully before entrusting their money to a particular donation organization. Best regards, Patrick Widera.
The statement on the use of the donation funds is to lead astray: it would be easy to calculate by means of the income and the distribution to projects a quota, without somebody additionally. Unfortunately, Ms Paul refuses to provide relevant data to the donation certification organizations, which makes the assessment of the use of funds impossible and prevents transparency. Seriousness is different.
[...] 2012 ngo: dialog professionell: Current newsletter SAZ: Fundraising Echo 4/2012 Berufebilder: "Online donations work better in the event of a disaster" socialmediakiel: NPO Fundraising Study: Donors would give more if ... Main-Netz: On the Internet [...]
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